<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/' xmlns:georss='http://www.georss.org/georss' xmlns:gd='http://schemas.google.com/g/2005' xmlns:thr='http://purl.org/syndication/thread/1.0'><id>tag:blogger.com,1999:blog-5492412764979482181</id><updated>2011-10-28T11:31:03.182-07:00</updated><category term='landscaping'/><category term='You can help defeat SB-6780'/><category term='DUAL and  MULTIPLE DIAGNOSIS'/><category term='You can help defeat SSB-6780'/><category term='&quot;COMMUNITY&quot; RESOURCES'/><category term='garden'/><category term='DOWN&apos;S SYNDROME'/><category term='NEWS'/><category term='RIGHTS'/><category term='police'/><category term='advocacy'/><category term='Contact Legislators'/><category term='&quot;NATIONAL TREND&quot; CLAIM'/><category term='Olmstead'/><category term='Community'/><category term='CARE Evaluations'/><category term='activism'/><category term='NAMI'/><category term='&quot;n &quot;Community&quot; Quality Assurance Standards'/><category term='civic concerns'/><category term='Specialized Programs'/><category term='SEMINARS'/><category term='Humor'/><category term='YOU CAN HELP'/><category term='EVENTS'/><category term='parents of children with special needs'/><category term='SB 6182'/><category term='exercise'/><category term='therapy'/><category term='&quot;Community&quot; Quality Assurance Standards'/><category term='Inclusivity'/><category term='SB5132'/><category term='SB 5459'/><category term='5459 PLACES  DD SERVICES IN JEOPARDY'/><category term='STORIES'/><category term='Music'/><category term='PERMANENT HOMES'/><category term='autism'/><category term='Can You Help?'/><category term='Seattle City Council'/><category term='Authors'/><category term='communication'/><category term='Art'/><category term='New Start'/><category term='HR1255'/><category term='5459'/><category term='MEDICAID LAW'/><category term='NEW and INNOVATIVE'/><category term='Seattle Parks'/><category term='INCLUSION'/><category term='economy of scale'/><category term='Costs of SSB-6780'/><category term='DDD funding'/><category term='THE RHC CONTROVERSY'/><category term='SB6780 RHC CLOSURE BILL'/><category term='VOR Action Alert: Oppose Ne&apos;eman nomination'/><category term='Robyn Sims'/><category term='RHC Access'/><category term='Home and Community Based Service Waivers'/><category term='KCDDD Plan'/><category term='Movies'/><category term='crisis'/><category term='NADD'/><category term='RHC CLOSURE DISCUSSION'/><category term='ENCOURAGEMENT'/><category term='Blog purpose'/><category term='reduction of services'/><category term='DD EXCHANGE: PURPOSE'/><category term='Books'/><title type='text'>Developmental  Disabilities Exchange</title><subtitle type='html'></subtitle><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/posts/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default?max-results=100'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/'/><link rel='hub' href='http://pubsubhubbub.appspot.com/'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>90</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>100</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1861365515856441005</id><published>2011-10-28T11:15:00.000-07:00</published><updated>2011-10-28T11:31:03.227-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='RHC Access'/><category scheme='http://www.blogger.com/atom/ns#' term='RHC CLOSURE DISCUSSION'/><title type='text'></title><summary type='text'>KEEP RHCS CREATE SYSTEMS FOR SAFETY &amp;  PREVENTIONIN GENERAL-COMMUNITY CARE SYSTEM FOR PEOPLE WITH DDCan Tommy's preventable   death make a difference?  The governor, DSHS and the  Wa. legislature need to back up, stop the closures of RHCs!  Basic safeguards, systems for prevention of such tragedies are sorely  needed  in Wa. State's system of "community" residential care.  DSHS  depends on </summary><link rel='related' href='http://www.thestand.org/2011/10/risks-of-deinstitutionalization-now-outweigh-the-benefits/' title=''/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1861365515856441005/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/10/keep-rhcs-create-systems-for-safety.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1861365515856441005'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1861365515856441005'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/10/keep-rhcs-create-systems-for-safety.html' title=''/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-9123518281692999742</id><published>2011-07-07T19:17:00.000-07:00</published><updated>2011-07-07T19:43:10.141-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Robyn Sims'/><title type='text'>SAYING A GRATEFUL GOODBYE</title><summary type='text'>Triple  Tribute to Robin Sims“Resolve  is what brings us back every year and what keeps us going as advocates  day in and day out, even against the odds. If not us, who? Our resolve  speaks to the immediacy of the need and our unending actions to meet our  daily challenges.” This statement was part of Robin Sims' last VOR  President’s Message. Robin had been VOR’s President since 2008 and  “</summary><link rel='related' href='http://www.vor.net/component/content/article/34-donate/212-the-robin-sims-memorial-fund?q=robin+sims' title='SAYING A GRATEFUL GOODBYE'/><link rel='enclosure' type='' href='http://youtu.be/L6HDA6kUIyc' length='0'/><link rel='enclosure' type='' href='http://youtu.be/bcEInf2tKxI' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/9123518281692999742/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/07/saying-grateful-goodbye.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/9123518281692999742'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/9123518281692999742'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/07/saying-grateful-goodbye.html' title='SAYING A GRATEFUL GOODBYE'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2875282220883182713</id><published>2011-07-04T19:10:00.000-07:00</published><updated>2011-07-04T20:23:38.065-07:00</updated><title type='text'>DDD CUTS:  LESS OF WHICH  SERVICES?</title><summary type='text'>CONSIDERING  WHAT IS IMPORTANT FOR  EACH  INDIVIDUAL  WITH DDIt has taken me a while to digest some staggering  information from 2 budget "conferences" led by DSHS  last Thursday.  The primary speakers were Susan Dreyfus, DSHS Secretary and Mr. Doug Porter, Assistant Secretary for  DSHS Health and Recovery Service.Mr. Porter explained that many of the cuts are in jeopardy due to legislated "start</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2875282220883182713/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/07/ddd-budget-cuts-less-of-which-services.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2875282220883182713'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2875282220883182713'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/07/ddd-budget-cuts-less-of-which-services.html' title='DDD CUTS:  LESS OF WHICH  SERVICES?'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-7542837700625098487</id><published>2011-07-03T22:37:00.000-07:00</published><updated>2011-07-03T22:43:10.466-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='THE RHC CONTROVERSY'/><category scheme='http://www.blogger.com/atom/ns#' term='5459'/><title type='text'>Progress or Pie in the Sky?</title><summary type='text'>The governor has signed 5459 into law. As noted previously, it is a very flawed law. As I have been assessing the process by which this happened, I keep running into information which makes me question it, question the legitimacy of the process. I wish I were an attorney with such information at my disposal. I have so many questions!Truly, there is no economic benefit to society, nor any to </summary><link rel='related' href='http://groups.google.com/group/dd-coalition/browse_thread/thread/2bc2925fef3bfdac' title='Progress or Pie in the Sky?'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/7542837700625098487/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/07/progress-or-pie-in-sky.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7542837700625098487'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7542837700625098487'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/07/progress-or-pie-in-sky.html' title='Progress or Pie in the Sky?'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1993960017134308766</id><published>2011-06-23T12:48:00.000-07:00</published><updated>2011-06-23T13:26:21.643-07:00</updated><title type='text'>VALUING WHAT IS BROKEN</title><summary type='text'>"When the Japanese mend broken objects they aggrandize the damage by filling the cracks with gold, because they believe that when something's suffered damage and has a history it becomes more beautiful.- Barbara BloomAfter the intensity of the campaign we have been waging to defend the  RHC homes of our loved ones this uplifting thought  comes by way of my  friend,  Marie Dudek.         imagine a</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1993960017134308766/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/06/valuing-what-is-broken.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1993960017134308766'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1993960017134308766'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/06/valuing-what-is-broken.html' title='VALUING WHAT IS BROKEN'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-928332815527056590</id><published>2011-06-22T20:30:00.000-07:00</published><updated>2011-06-23T00:31:34.619-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='&quot;NATIONAL TREND&quot; CLAIM'/><category scheme='http://www.blogger.com/atom/ns#' term='&quot;n &quot;Community&quot; Quality Assurance Standards'/><title type='text'>WHAT  NATIONAL TREND TO CLOSE RHCS?</title><summary type='text'>Having spent the afternoon in consultation with old colleagues in our efforts to retain the best possible services for the greatest number of people with dd, I   have come away with the desire to educate  and communicate, even if it is one-way.  I still hope that readers of the Developmental Disabilities  Exchange  will want to respond and make it a dialogue, with each other as well as with me, </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/928332815527056590/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/06/what-national-trend-to-close-rhcs.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/928332815527056590'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/928332815527056590'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/06/what-national-trend-to-close-rhcs.html' title='WHAT  NATIONAL TREND TO CLOSE RHCS?'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-4195689636076296448</id><published>2011-05-30T00:50:00.000-07:00</published><updated>2011-05-30T01:08:54.604-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Olmstead'/><category scheme='http://www.blogger.com/atom/ns#' term='RIGHTS'/><category scheme='http://www.blogger.com/atom/ns#' term='RHC Access'/><title type='text'>REFUSED RHC ADMISSION ?</title><summary type='text'> SHARING OUR STORIES Washington State's Residential Habilitation Centers  (campus-based communities with comfortably adapted homes) provide centralized services to people with developmental disabilities/intellectual disabilities.  For the most part, their residents are people whose needs for care and close attention are high and who have severely  limited abilities to function independently.  24-</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/4195689636076296448/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/05/refused-rhc-admission.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/4195689636076296448'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/4195689636076296448'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/05/refused-rhc-admission.html' title='REFUSED RHC ADMISSION ?'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2886727543409127711</id><published>2011-05-27T14:13:00.000-07:00</published><updated>2011-05-27T16:10:12.752-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='5459 PLACES  DD SERVICES IN JEOPARDY'/><title type='text'>2-ssb 5459</title><summary type='text'>WA. STATE DD SERVICES JEOPARDIZED Previous readers of this blog, as well as many advocates, active throughout this campaign, are familiar with Cheryl Felak, RN and  mom to a young man with multiple, severe developmental disabilities.  CHERYL  has been  tireless in her research to oppose  5459 and it's damaging consequences  .  While I await her reprint permission, I am publishing my own  response</summary><link rel='related' href='http://tvw.org/media/mediaplayer.cfm?evid=2011050126B&amp;TYPE=V&amp;CFID=5620181&amp;CFTOKEN=34023945&amp;bhcp=1' title='2-ssb 5459'/><link rel='enclosure' type='' href='http://tvw.org/media/mediaplayer.cfm?evid=2011050126B&amp;TYPE=V&amp;CFID=5620181&amp;CFTOKEN=34023945&amp;bhcp=1' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2886727543409127711/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/05/2-ssb-5459.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2886727543409127711'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2886727543409127711'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/05/2-ssb-5459.html' title='2-ssb 5459'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3212811190007767451</id><published>2011-05-27T13:03:00.000-07:00</published><updated>2011-05-27T13:16:35.075-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Blog purpose'/><title type='text'>A NEW BEGINNING</title><summary type='text'>THE UNSETTLED DUST:When I started this blog, it was with the intention of establishing a  forum for peace, and mutual understanding and support among parents,  guardians and people with developmental disabilities.However, our Wa. legislative session that just ended, yesterday,  has proven to me that  there must be some very uncomfortable truth telling before we ever will  get to the  lofty  point</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3212811190007767451/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/05/new-beginning.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3212811190007767451'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3212811190007767451'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/05/new-beginning.html' title='A NEW BEGINNING'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-728422393970726274</id><published>2011-05-27T12:20:00.001-07:00</published><updated>2011-05-27T13:49:07.231-07:00</updated><title type='text'>DEMOCRATIC PROCESS BITES THE DUST</title><summary type='text'>2-SSB 5459The 2011  legislative session is  officially over, but the Governor has not signed the budget, nor all of the legislation. 2-SSB 5459 passed.  It does much more damage than it's  closure of  Frances Haddon Morgan Center and the  freezing of  admissions at Yakima Valley School (Both residential habilitation centers (RHCs) and "institutions" by Federal standards) See my next post for a </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/728422393970726274/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/05/democratic-process-bites-dust.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/728422393970726274'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/728422393970726274'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/05/democratic-process-bites-dust.html' title='DEMOCRATIC PROCESS BITES THE DUST'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2297050039860966487</id><published>2011-02-19T18:57:00.000-08:00</published><updated>2011-05-27T13:18:14.027-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='THE RHC CONTROVERSY'/><category scheme='http://www.blogger.com/atom/ns#' term='Home and Community Based Service Waivers'/><category scheme='http://www.blogger.com/atom/ns#' term='crisis'/><category scheme='http://www.blogger.com/atom/ns#' term='SB 5459'/><category scheme='http://www.blogger.com/atom/ns#' term='STORIES'/><category scheme='http://www.blogger.com/atom/ns#' term='reduction of services'/><category scheme='http://www.blogger.com/atom/ns#' term='DDD funding'/><category scheme='http://www.blogger.com/atom/ns#' term='police'/><category scheme='http://www.blogger.com/atom/ns#' term='advocacy'/><category scheme='http://www.blogger.com/atom/ns#' term='parents of children with special needs'/><title type='text'></title><summary type='text'>Because We Care - Beyond Inclusion HOW CAN THIS HAPPEN? The scenario below is true. The client was 14 at the time. He has a rare genetic syndrome which causes a global developmental delay, early onset pediatric dementia (his brain is shrinking), behavior problems coupled with manic and psychotic episodes. This was after his 5th hospital admission in 1 - 1/2 years.He was on a Home and </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2297050039860966487/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/02/because-we-care-beyond-inclusion-how.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2297050039860966487'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2297050039860966487'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/02/because-we-care-beyond-inclusion-how.html' title=''/><author><name>Cheryl Felak</name><uri>http://www.blogger.com/profile/11031678465608678049</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://3.bp.blogspot.com/-WcGDj8nIs-k/TWCDYIF4bGI/AAAAAAAAACQ/XlQD9RT7mIU/s72-c/logo%2B4.jpg' height='72' width='72'/><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8159331390131885528</id><published>2011-01-24T19:34:00.000-08:00</published><updated>2011-01-24T20:17:14.171-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Art'/><category scheme='http://www.blogger.com/atom/ns#' term='autism'/><title type='text'>FORREST SARGENT:  TALENTED PHOTOGRAPHER</title><summary type='text'>FORREST SPEAKS!Celebrate with Forrest and his family.Celebrate his opening through art and his art opening!    Photography, really.Autism claimed his voice.Voiceless, he acted out.Reader board, camera,  loving, patient, and persistent parents and Fircrest School  have helped set his voice free!Forrest's photography show has been so successful that he has already sold 16 photos!Now through Feb 10,</summary><link rel='related' href='http://www.komonews.com/news/local/114186514.html?tab=video' title='FORREST SARGENT:  TALENTED PHOTOGRAPHER'/><link rel='enclosure' type='text/html' href='http://www.king5.com/news/local/Photographer-with-autism-sees-world-through-the-lens-114399899.html' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8159331390131885528/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/01/forrest-sargent-talented-photographer.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8159331390131885528'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8159331390131885528'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/01/forrest-sargent-talented-photographer.html' title='FORREST SARGENT:  TALENTED PHOTOGRAPHER'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-556563860073803566</id><published>2011-01-16T10:58:00.000-08:00</published><updated>2011-01-24T20:32:47.951-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='SB5132'/><category scheme='http://www.blogger.com/atom/ns#' term='economy of scale'/><category scheme='http://www.blogger.com/atom/ns#' term='reduction of services'/><category scheme='http://www.blogger.com/atom/ns#' term='RHC CLOSURE DISCUSSION'/><title type='text'>RHC CLOSURES =  COST INCREASE + REDUCTION IN SERVICES</title><summary type='text'>RHC CLOSURES = INCREASE COSTS + REDUCTION OF SERVICESIn these lean times of budget crisis and harmful cuts I do not understand why anyone would even consider closing the RHCs. Ideological differences aside,  just based on economics, this  decision would be  a BUDGET DISASTER!•Yes, these high needs residents are more expensive to care for:  no matter where they live they will be more expensive – </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/556563860073803566/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/01/rhc-clusres-cost-increase-reduction-in.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/556563860073803566'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/556563860073803566'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/01/rhc-clusres-cost-increase-reduction-in.html' title='RHC CLOSURES =  COST INCREASE + REDUCTION IN SERVICES'/><author><name>Cheryl Felak</name><uri>http://www.blogger.com/profile/11031678465608678049</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3298790869453622781</id><published>2011-01-10T17:38:00.000-08:00</published><updated>2011-01-10T18:07:23.790-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='&quot;COMMUNITY&quot; RESOURCES'/><title type='text'>Medicaid Program Cuts -HOW THE ACCESS FUND CAN HELP</title><summary type='text'>Here is a resource for Wa. State residents who are disabled.  It is an excerpt from the Washington Access Fund Newsletter.Access Fund NewsJanuary, 2011Medicaid Program Cuts - How the Access Fund can HelpThe WA State Medicaid program began notifying clients in December of a revised list of 2011 program cuts. Some immediate cuts (effective January 1st, 2011) include adult eyeglasses and contacts, </summary><link rel='related' href='http://e2ma.net/go/6922126051/208430303/219097710/1404208/goto:http://www.washingtonaccessfund.org/index.php' title='Medicaid Program Cuts -HOW THE ACCESS FUND CAN HELP'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3298790869453622781/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/01/medicaid-program-cuts-how-access-fund.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3298790869453622781'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3298790869453622781'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/01/medicaid-program-cuts-how-access-fund.html' title='Medicaid Program Cuts -HOW THE ACCESS FUND CAN HELP'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-681156779942683041</id><published>2011-01-09T17:41:00.000-08:00</published><updated>2011-01-09T18:01:00.551-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Can You Help?'/><title type='text'>Tom Anderson of Shoreline Wa.  Is Missing.</title><summary type='text'>Anyone who has information on Anderson's  whereabouts is asked to call 206-371-1048, 206-387-0571 or 911.Developmentally disabled Shoreline man has been  missing since Dec. 27 seattletimes.nwsource.com  Click to read the full Times article with description of Tom, .)Tom Anderson, 62, was last seen at  approximately 5:30 p.m. on Dec. 27 at his home near North 160th Street  and Evanston Avenue </summary><link rel='enclosure' type='' href='http://seattletimes.nwsource.com' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/681156779942683041/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/01/tom-anderson-of-shoreline-wa-is-missing.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/681156779942683041'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/681156779942683041'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/01/tom-anderson-of-shoreline-wa-is-missing.html' title='Tom Anderson of Shoreline Wa.  Is Missing.'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-5761191253709756329</id><published>2011-01-07T18:32:00.000-08:00</published><updated>2011-01-07T19:17:07.073-08:00</updated><title type='text'>HOW SAFE ARE OUR LOVED ONES?</title><summary type='text'>No doubt, you already are acquainted with the recently reported sexual assaults on defenseless people with  developmental disabilities living in Los Angeles.  (Click the title of this blog to read the CNN report.)  Over 100 hours of video taped sexual assaults were made available, anonymously,  to authorities.  How does this happen? Who protects defenseless residents?I would be interested in </summary><link rel='related' href='http://www.cnn.com/2011/CRIME/01/06/california.rape.disabled/index.html?eref=mrss_igoogle_cnn' title='HOW SAFE ARE OUR LOVED ONES?'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/5761191253709756329/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/01/how-safe-are-our-loved-ones.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5761191253709756329'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5761191253709756329'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/01/how-safe-are-our-loved-ones.html' title='HOW SAFE ARE OUR LOVED ONES?'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8123022870482283572</id><published>2011-01-07T18:14:00.000-08:00</published><updated>2011-01-07T18:24:45.179-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='New Start'/><title type='text'>HELLO AGAIN</title><summary type='text'>I have been silent on this blog for some months in large part because I have been struggling with an internal conflict:  Lofty Ideal vs Reality.   My  desire and belief that we, as advocates for people with developmental disabilities should be able to come together and, taking into account our differences, work out mutually agreeable systems for providing the best supports for all concerned vs </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8123022870482283572/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2011/01/i-have-been-silent-on-this-blog-for.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8123022870482283572'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8123022870482283572'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2011/01/i-have-been-silent-on-this-blog-for.html' title='HELLO AGAIN'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3788487514491088866</id><published>2010-07-17T09:40:00.000-07:00</published><updated>2010-07-17T13:43:55.447-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='THE RHC CONTROVERSY'/><category scheme='http://www.blogger.com/atom/ns#' term='ENCOURAGEMENT'/><category scheme='http://www.blogger.com/atom/ns#' term='STORIES'/><category scheme='http://www.blogger.com/atom/ns#' term='NEWS'/><title type='text'>The House Where Kathy Lives</title><summary type='text'>MORE THAN JUST A PARTYHawaiian theme,  marathon kareoke, shy smiles and out-loud laughter, home cooked potluck,  old friends, family, professional and regular staff dropping in,   and eventually, great giggles from Kathy as she whirled in her dancing wheelchair:  The party at Kathy's house started outside on the covered patio, but came inside as breezes blew cooler.Twenty years of familyhood at </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3788487514491088866/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/07/house-where-kathy-lives.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3788487514491088866'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3788487514491088866'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/07/house-where-kathy-lives.html' title='The House Where Kathy Lives'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2549620584364912466</id><published>2010-07-14T15:51:00.001-07:00</published><updated>2010-07-14T15:54:26.884-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='crisis'/><category scheme='http://www.blogger.com/atom/ns#' term='ENCOURAGEMENT'/><category scheme='http://www.blogger.com/atom/ns#' term='&quot;COMMUNITY&quot; RESOURCES'/><category scheme='http://www.blogger.com/atom/ns#' term='Community'/><category scheme='http://www.blogger.com/atom/ns#' term='parents of children with special needs'/><title type='text'>Where are the Parents?</title><summary type='text'>This essay is an honest portrail of life of a parent with a special needs child - read this and try not to cry.Where Are the Parents?By Sue Stuyvesant, ParentHey everyone. For those of you who don't know me (I'm only an occasional poster) I am mom to Michelle, 9 years old, microcephalic, athetoid/spastic CP, cortical visual impairment, seizure disorder -- and CUTE! OK, now for the reason I'm </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2549620584364912466/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/07/where-are-parents.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2549620584364912466'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2549620584364912466'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/07/where-are-parents.html' title='Where are the Parents?'/><author><name>Cheryl Felak</name><uri>http://www.blogger.com/profile/11031678465608678049</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8113793039603233636</id><published>2010-07-14T13:49:00.000-07:00</published><updated>2010-07-14T14:07:26.662-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='THE RHC CONTROVERSY'/><category scheme='http://www.blogger.com/atom/ns#' term='Olmstead'/><category scheme='http://www.blogger.com/atom/ns#' term='Specialized Programs'/><category scheme='http://www.blogger.com/atom/ns#' term='Seattle Parks'/><category scheme='http://www.blogger.com/atom/ns#' term='RIGHTS'/><category scheme='http://www.blogger.com/atom/ns#' term='HR1255'/><category scheme='http://www.blogger.com/atom/ns#' term='STORIES'/><category scheme='http://www.blogger.com/atom/ns#' term='DUAL and  MULTIPLE DIAGNOSIS'/><category scheme='http://www.blogger.com/atom/ns#' term='communication'/><category scheme='http://www.blogger.com/atom/ns#' term='civic concerns'/><category scheme='http://www.blogger.com/atom/ns#' term='RHC CLOSURE DISCUSSION'/><category scheme='http://www.blogger.com/atom/ns#' term='INCLUSION'/><title type='text'>Advocacy Concerns</title><summary type='text'>This is an abbreviated version of an open letter to people who oppose inclusion of Residential Habilitation Centers (RHCs) in the continuum of services for our family and community members who have disabilities. I felt the need to write it after receiving an extremely misleading Action Alert opposing HR 1255 (HR1255 provides a process by which parents &amp; guardians, on behalf of their children/</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8113793039603233636/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/07/advocacy-concerns.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8113793039603233636'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8113793039603233636'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/07/advocacy-concerns.html' title='Advocacy Concerns'/><author><name>Cheryl Felak</name><uri>http://www.blogger.com/profile/11031678465608678049</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-246378697809566784</id><published>2010-07-11T07:38:00.000-07:00</published><updated>2010-07-11T08:21:50.609-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Humor'/><title type='text'>"Retarded" Grandparents</title><summary type='text'>I have been troubled by the  semantics debate.  I agree it is important to be respectful, and equally important that words  portray accurately what is meant, &amp; most importantly: we all  need to recognize that people who taunt others with labels are, themselves, rather intellectually, emotionally, and socially stunted; and we can't legislate against that!I found this to be a refreshing break:  </summary><link rel='related' href='http://www.mobyinthemorning.com/blog//1/2010/02/Retarded-Grandparents.cfm' title='&quot;Retarded&quot; Grandparents'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/246378697809566784/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/07/retarded-grandparents.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/246378697809566784'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/246378697809566784'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/07/retarded-grandparents.html' title='&quot;Retarded&quot; Grandparents'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1952221364753418244</id><published>2010-07-07T22:48:00.000-07:00</published><updated>2010-07-07T23:47:02.268-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='NEW and INNOVATIVE'/><title type='text'>Are DD  Growing In Numbers?</title><summary type='text'>I find the following statistics staggering!"One out of 10 children born today is diagnosed with a developmental disability including autism, cerebral palsy, mental retardation, and Prader Willi. One out of every 100 children is diagnosed with autism. Eight out of 10 families raising a special needs child is experiencing divorce, and a disabled child is three times more likely to experience child </summary><link rel='related' href='http://www.sun-sentinel.com/community/custom/society/broward/fl-societyse-jafco-0707-20100707,0,4660735.story' title='Are DD  Growing In Numbers?'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1952221364753418244/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/07/are-dd-growing-in-numbers.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1952221364753418244'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1952221364753418244'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/07/are-dd-growing-in-numbers.html' title='Are DD  Growing In Numbers?'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3733961862489163484</id><published>2010-07-01T23:06:00.001-07:00</published><updated>2010-07-02T18:19:50.566-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='CARE Evaluations'/><title type='text'>Kathy's CARE Evaluation</title><summary type='text'>OK, I admit it;  I think Wa state should be utilizing it's resources differently to maximize the services to people with dd in "the community" while retaining RHC (residential developmental center) services options.  So, I found cause for optimism in the  long-overdue  budget proviso  passed by the legislature, this year. Had the governor not vetoed it,  it would have funded a  comprehensive </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3733961862489163484/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/07/one-care-evaluation-kathy.html#comment-form' title='5 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3733961862489163484'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3733961862489163484'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/07/one-care-evaluation-kathy.html' title='Kathy&apos;s CARE Evaluation'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>5</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-7802907193348220254</id><published>2010-06-25T21:49:00.000-07:00</published><updated>2010-06-25T22:07:31.111-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='THE RHC CONTROVERSY'/><category scheme='http://www.blogger.com/atom/ns#' term='MEDICAID LAW'/><category scheme='http://www.blogger.com/atom/ns#' term='RIGHTS'/><title type='text'>Tennessee Judge Rules for Families</title><summary type='text'>Guardian/Conservator AuthorityTo Choose  ICF/MR or "community" homeExcerpts from VOR Weekly E-Update:"As families prepare for the closure of the Clover Bottom Developmental Center, on May 28, a court ruled in favor of the right (of) individuals and legal guardians to choose another ICF/MR (deemed a “congregate” setting), even when professionals have determined the individuals could be provided (</summary><link rel='related' href='http://www.vor.net/get-help/legal-resources/' title='Tennessee Judge Rules for Families'/><link rel='enclosure' type='' href='http://www.vor.net/get-help/legal-resources/' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/7802907193348220254/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/06/tennessee-judge-rules-for-families.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7802907193348220254'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7802907193348220254'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/06/tennessee-judge-rules-for-families.html' title='Tennessee Judge Rules for Families'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3712907749167206379</id><published>2010-06-21T21:10:00.000-07:00</published><updated>2010-06-21T21:15:16.252-07:00</updated><title type='text'>Untwisting The Tale: HR 1255: THE Bill</title><summary type='text'>The TextSimple, Clear &amp; Straightforward"A BILLTo protect the interests of each resident of intermediate care facilities for the mentally retarded in class action lawsuits on behalf of such resident.Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled,SECTION 1. PROTECTING THE INTERESTS OF EACH RESIDENT OF INTERMEDIATE CARE FACILITIES FOR </summary><link rel='related' href='http://vor.net/legislative-voice/legislation/hr1255?q=' title='Untwisting The Tale: HR 1255: THE Bill'/><link rel='enclosure' type='' href='http://vor.net/legislative-voice/legislation/hr1255?q=' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3712907749167206379/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/06/text-simple-clear-straightforward-bill.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3712907749167206379'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3712907749167206379'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/06/text-simple-clear-straightforward-bill.html' title='Untwisting The Tale: HR 1255: THE Bill'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2659031150715840968</id><published>2010-06-18T16:17:00.000-07:00</published><updated>2010-06-19T11:58:36.379-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='HR1255'/><title type='text'>Untwisting The Tale: HR 1255: THE TRUTH</title><summary type='text'>    As promised, the post, below, is by guest blogger, Tamie Hopp of the VOR.  You will see that HR1255 is in deed  needed,   that it provides critical  rights and in no way removes  or diminishes  any rights.Don't miss the comments following  Tamie's explanation, especially the letter by Terri Anderson, Washington State's representative to VOR.Saskia</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2659031150715840968/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/06/untwisting-tale-hr-1255-truth_8646.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2659031150715840968'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2659031150715840968'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/06/untwisting-tale-hr-1255-truth_8646.html' title='Untwisting The Tale: HR 1255: THE TRUTH'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-7912442052174305681</id><published>2010-06-18T14:52:00.000-07:00</published><updated>2010-06-18T15:58:19.359-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='HR1255'/><title type='text'>Untwisting The Tale:  HR 1255: THE TRUTH</title><summary type='text'>Thank you for this post and for your effort to set the record straight about H.R. 1255.It is simply wrong to say that H.R. 1255 restricts choice. Instead, if passed, H.R. 1255 would restore the rights of individuals and their legal guardians to choose their attorneys and not be forced into lawsuits that threaten the very existence of their homes.Specifically H.R. 1255 would provide residents of </summary><link rel='related' href='http://www.vor.net' title='Untwisting The Tale:  HR 1255: THE TRUTH'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/7912442052174305681/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/06/untwisting-tale-hr-1255-truth_18.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7912442052174305681'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7912442052174305681'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/06/untwisting-tale-hr-1255-truth_18.html' title='Untwisting The Tale:  HR 1255: THE TRUTH'/><author><name>VOR</name><uri>http://www.blogger.com/profile/00536181077369688392</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1162996949882036505</id><published>2010-06-17T14:50:00.000-07:00</published><updated>2010-06-18T11:21:18.768-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='HR1255'/><title type='text'>Untwisting The Tale: Getting To The Truth</title><summary type='text'>HR 1255PROTECTING RESIDENTIAL CENTER RESIDENTSYesterday, ARC of Wa. distributed a call-to-action regarding HR1255, a bill which I have been following and have understood to be  protective of people with dd who need and reside in residential centers.   In Washington State we call them RHCs (residential habilitation centers.)  Since the thrust of the message was exactly opposite of my understanding</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1162996949882036505/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/06/untwisting-tale-getting-to-truth.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1162996949882036505'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1162996949882036505'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/06/untwisting-tale-getting-to-truth.html' title='Untwisting The Tale: Getting To The Truth'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1189261248971759957</id><published>2010-06-15T23:56:00.000-07:00</published><updated>2010-06-16T20:15:59.133-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Inclusivity'/><category scheme='http://www.blogger.com/atom/ns#' term='INCLUSION'/><title type='text'>WHAT DOES INCLUSION MEAN?</title><summary type='text'>The word," inclusion" is coming up a lot, lately, related to  people with dd.As usual, points of view  are varied.   Here are two:Heather  N. wrote, asking that Developmental Disabilities Exchange  feature the  "community"-based services of the business her PR company promotes.  Since the purpose of this blog is dialogue and mutual understanding, rather  than promotional, it doesn't seem </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1189261248971759957/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/06/what-does-inclusion-mean.html#comment-form' title='5 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1189261248971759957'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1189261248971759957'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/06/what-does-inclusion-mean.html' title='WHAT DOES INCLUSION MEAN?'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>5</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8433217801689234993</id><published>2010-06-05T02:10:00.000-07:00</published><updated>2010-06-05T02:15:35.807-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='therapy'/><category scheme='http://www.blogger.com/atom/ns#' term='landscaping'/><category scheme='http://www.blogger.com/atom/ns#' term='garden'/><title type='text'>"Healing Garden" at Fircrest School, Shoreline</title><summary type='text'></summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8433217801689234993/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/06/healing-garden-at-fircrest-school.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8433217801689234993'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8433217801689234993'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/06/healing-garden-at-fircrest-school.html' title='&quot;Healing Garden&quot; at Fircrest School, Shoreline'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_heAqLGtfIgY/TAoU5und9cI/AAAAAAAAADY/3e9mkUiqCHs/s72-c/CIMG0165+fs+garden+chimes.jpg' height='72' width='72'/><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2579595125010410058</id><published>2010-06-04T17:14:00.001-07:00</published><updated>2010-06-04T22:53:48.136-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='STORIES'/><category scheme='http://www.blogger.com/atom/ns#' term='exercise'/><category scheme='http://www.blogger.com/atom/ns#' term='therapy'/><category scheme='http://www.blogger.com/atom/ns#' term='communication'/><category scheme='http://www.blogger.com/atom/ns#' term='landscaping'/><category scheme='http://www.blogger.com/atom/ns#' term='Community'/><category scheme='http://www.blogger.com/atom/ns#' term='garden'/><title type='text'>Therapeutic Gardens</title><summary type='text'>                Gardens are magical - that's my take on them.  I have enjoyed gardening both for my relaxation but also to interact with our son.  The garden offers many topics of conversation - from the weeds to the scents of the herbs to birds chirping to bees nesting.  We have followed flowers from seeds to gorgeous blooms and grown vegetables and berries.  The garden offers education in so </summary><link rel='related' href='http://pce.uw.edu/basic.aspx?id=4392' title='Therapeutic Gardens'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2579595125010410058/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/06/therapeutic-gardens.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2579595125010410058'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2579595125010410058'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/06/therapeutic-gardens.html' title='Therapeutic Gardens'/><author><name>Cheryl Felak</name><uri>http://www.blogger.com/profile/11031678465608678049</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://1.bp.blogspot.com/_VtM8faldwW8/TAmf0whyWeI/AAAAAAAAABw/MhnEzVsEPsM/s72-c/garden+2009+b.JPG' height='72' width='72'/><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8565857203774674175</id><published>2010-06-02T10:31:00.000-07:00</published><updated>2010-06-02T18:46:29.401-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Specialized Programs'/><category scheme='http://www.blogger.com/atom/ns#' term='YOU CAN HELP'/><title type='text'>OLDER IMACS FOR ASSISTIVE TECHNOLOGY</title><summary type='text'> 501-c3 COMPUTER DONATIONS  NEEDED(IRS  deductible / Friends of Fircrest )Hi SaskiaI am making a request on behalf of  the Fircrest Assistive Technology Clinic  for donations of  computers for people who live at Fircrest School in Shoreline Washington.  Almost all homes have at least one Mac for residents to use. Some of these are extremely old and failing. At this time we are requesting help in </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8565857203774674175/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/06/older-mac-computers-for-assistive.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8565857203774674175'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8565857203774674175'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/06/older-mac-computers-for-assistive.html' title='OLDER IMACS FOR ASSISTIVE TECHNOLOGY'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1306356111958041301</id><published>2010-05-29T12:29:00.000-07:00</published><updated>2010-05-29T12:31:21.094-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='crisis'/><category scheme='http://www.blogger.com/atom/ns#' term='police'/><category scheme='http://www.blogger.com/atom/ns#' term='autism'/><category scheme='http://www.blogger.com/atom/ns#' term='advocacy'/><title type='text'>Autistic Boy Arrested After Confrontation With Officer - Sacramento News Story - KCRA Sacramento</title><summary type='text'>Autistic Boy Arrested After Confrontation With Officer - Sacramento News Story - KCRA SacramentoThis story brings tears to my eyes and fury to my soul - I think about children that I know who have been unjustly arrested and treated like criminals due to their disabilities.  This is what our crisis teams look like sometimes.  Even upon discharge from the hospital, we were told there was nothing </summary><link rel='related' href='http://www.kcra.com/news/23687980/detail.html' title='Autistic Boy Arrested After Confrontation With Officer - Sacramento News Story - KCRA Sacramento'/><link rel='enclosure' type='text/html' href='http://www.kcra.com/news/23687980/detail.html' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1306356111958041301/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/05/autistic-boy-arrested-after.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1306356111958041301'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1306356111958041301'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/05/autistic-boy-arrested-after.html' title='Autistic Boy Arrested After Confrontation With Officer - Sacramento News Story - KCRA Sacramento'/><author><name>Cheryl Felak</name><uri>http://www.blogger.com/profile/11031678465608678049</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1628493300585580195</id><published>2010-05-18T21:11:00.001-07:00</published><updated>2010-05-18T23:15:49.204-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='NAMI'/><category scheme='http://www.blogger.com/atom/ns#' term='NADD'/><category scheme='http://www.blogger.com/atom/ns#' term='activism'/><category scheme='http://www.blogger.com/atom/ns#' term='DUAL and  MULTIPLE DIAGNOSIS'/><title type='text'>ActionDD team for NAMIWalk</title><summary type='text'>NAMIWalk - Seattle, WAActionDD formed a team to walk in the fundraiser for NAMI to help bring awareness to the issues that many of our family members face - being dually diagnosed with both a developmental disability and mental illness.NADD, an association for persons with developmental disabilities and mental health needs, is an organization that I recently joined to gather more information. As </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1628493300585580195/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/05/actiondd-team-for-namiwalk.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1628493300585580195'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1628493300585580195'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/05/actiondd-team-for-namiwalk.html' title='ActionDD team for NAMIWalk'/><author><name>Cheryl Felak</name><uri>http://www.blogger.com/profile/11031678465608678049</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_VtM8faldwW8/S_Nmc7DDBmI/AAAAAAAAAAM/eGv6E4kOBgU/s72-c/1+015.JPG.jpg' height='72' width='72'/><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2388265521858722783</id><published>2010-05-17T16:33:00.000-07:00</published><updated>2010-05-17T16:35:41.798-07:00</updated><title type='text'>Special Need Subdivisions</title><summary type='text'>I found this article on the ActionDD.org website.  This looks absolutely terrific - it's things like this that can happen when people dream!HOUSINGFamilies seek approval of special-needs subdivisionsA bill that would allow subdivisions catering to the developmentally disabled raises questions on how best to integrate those with special needs into society.BY ROBERT SAMUELSHERALD/TIMES TALLAHASSEE </summary><link rel='related' href='http://www.miamiherald.com/2010/04/27/1599506/families-seek-approval-of-special.html' title='Special Need Subdivisions'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2388265521858722783/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/05/special-need-subdivisions.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2388265521858722783'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2388265521858722783'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/05/special-need-subdivisions.html' title='Special Need Subdivisions'/><author><name>Cheryl Felak</name><uri>http://www.blogger.com/profile/11031678465608678049</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2891285520511492185</id><published>2010-05-17T15:36:00.000-07:00</published><updated>2010-05-17T15:48:55.239-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Specialized Programs'/><category scheme='http://www.blogger.com/atom/ns#' term='EVENTS'/><title type='text'>MOVIN' FOR MONEY</title><summary type='text'>byPeanut Butter &amp; JellyAs I watched his shoulders smoothly roll back and forth, his arms slicing through the water, his strong legs kicking behind with hardly a splash, I remembered that my son was always more graceful in water than he was on land.  As a toddler he crashed his way through life with more than his fair share of thumps and bumps; a "toe runner" the neurologist called him, and then </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2891285520511492185/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/05/movin-for-money.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2891285520511492185'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2891285520511492185'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/05/movin-for-money.html' title='MOVIN&apos; FOR MONEY'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-601947932792003368</id><published>2010-05-11T18:49:00.000-07:00</published><updated>2010-05-11T20:19:28.909-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Specialized Programs'/><category scheme='http://www.blogger.com/atom/ns#' term='Seattle Parks'/><category scheme='http://www.blogger.com/atom/ns#' term='Seattle City Council'/><title type='text'>Seattle Parks and Recreation Specialized Programs</title><summary type='text'>I attended the Seattle City Council Finance and Budget Committee on May 4, 2010.  I, too, as the previous woman who posted about this meeting, was amazed at the number of people in attendance.  I believe there were well over 600 people crammed into the cafeteria and there was an "overflow" room next door.  I attended this meeting (my first ever) to support our Seattle Parks and Recreation </summary><link rel='enclosure' type='' href='http://www.seattle.gov/parks/specialpops/Spring10.pdf' length='0'/><link rel='enclosure' type='' href='http://www.seattlechannel.org/videos/video.asp?ID=2101025' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/601947932792003368/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/05/seattle-parks-and-recreation.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/601947932792003368'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/601947932792003368'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/05/seattle-parks-and-recreation.html' title='Seattle Parks and Recreation Specialized Programs'/><author><name>Cheryl Felak</name><uri>http://www.blogger.com/profile/11031678465608678049</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3298722928493159714</id><published>2010-05-11T18:27:00.000-07:00</published><updated>2010-05-11T19:43:45.727-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Authors'/><title type='text'>Cheryl Felak Joins Developmental Disabilites Exchange</title><summary type='text'>Today, I am delighted  to introduce Cheryl Felak as a new author of Developmental Disabilities Exchange!Cheryl has been a contributing reader since the blog's beginning in January.  I have been inspired by her seemingly tireless energy  and enthusiasm as well as  her thirst for answers!Cheryl comes to us with rich experience and I know readers  will be eager to know about her; but I would like to</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3298722928493159714/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/05/cheryl-felac-joins-developmental.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3298722928493159714'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3298722928493159714'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/05/cheryl-felac-joins-developmental.html' title='Cheryl Felak Joins Developmental Disabilites Exchange'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-6480282298671029690</id><published>2010-05-09T09:44:00.000-07:00</published><updated>2010-05-10T07:12:31.135-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Inclusivity'/><category scheme='http://www.blogger.com/atom/ns#' term='&quot;COMMUNITY&quot; RESOURCES'/><title type='text'>What's A Mom &amp; Her Boy To Do?</title><summary type='text'>WHY NOT TO CUT THE SEATTLE PARKS BUDGETA Personal StoryByPeanut Butter 'n JellyYou have to understand that it would ordinarily take an Act of Congress and a College Football Team to wrestle my son into a suit and tie, but after twenty years of participation in Seattle Parks and Recreation's Specialized Programs, when someone handed him an invitation to a Public Hearing that involved possible </summary><link rel='related' href='http://www.seattle.gov/html/feedback.htm' title='What&apos;s A Mom &amp; Her Boy To Do?'/><link rel='enclosure' type='text/html' href='http://www.seattle.gov/html/feedback.htm' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/6480282298671029690/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/05/whats-mom-her-boy-to-do.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6480282298671029690'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6480282298671029690'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/05/whats-mom-her-boy-to-do.html' title='What&apos;s A Mom &amp; Her Boy To Do?'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-5918870225577178205</id><published>2010-05-01T21:08:00.000-07:00</published><updated>2010-05-03T10:25:34.687-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='NEW and INNOVATIVE'/><category scheme='http://www.blogger.com/atom/ns#' term='NEWS'/><title type='text'>Life &amp; Work of Dr. Stanley Greenspan</title><summary type='text'>Autism &amp; DD Pioneer                 Speaking from the points of view of a sibling who once was part of her sister's  caregiving family-team, current guardian, nurse, and former developmental therapist, I fully endorse the basic maxim that learning must wait on maturation.  What this means is that a person cannot learn something until his/her brain-neuro-muscular  system is sufficiently mature to </summary><link rel='related' href='http://www.examiner.com/x-43538-DC-Autism-Examiner~y2010m4d28-Dr-Stanley-Greenspan-dies-at-69-founded-Floortime-and-developmental-approaches-to-autism-therapy' title='Life &amp; Work of Dr. Stanley Greenspan'/><link rel='enclosure' type='' href='http://www.examiner.com/x-43538-DC-Autism-Examiner~y2010m4d28-Dr-Stanley-Greenspan-dies-at-69-founded-Floortime-and-developmental-approaches-to-autism-therapy' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/5918870225577178205/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/05/life-work-of-dr-stanley-greenspan.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5918870225577178205'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5918870225577178205'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/05/life-work-of-dr-stanley-greenspan.html' title='Life &amp; Work of Dr. Stanley Greenspan'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3486026642984631917</id><published>2010-04-29T23:01:00.000-07:00</published><updated>2010-04-30T00:14:34.269-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='KCDDD Plan'/><category scheme='http://www.blogger.com/atom/ns#' term='DDD funding'/><title type='text'>KCDDD 3 Year Draft Plan</title><summary type='text'>Parent CommentsbyCheryl Felak(Tomorrow, end of business,  is the deadline for written public comment on the proposed King County DDD 3 year plan.  Have you written &amp; sent your input?  If not, your voice is important!For access to the draft plan and submission info, click on this post's title.)Cheryl is a parent whose son with dd lived at home until it recently became too difficult for everyone </summary><link rel='related' href='http://www.kingcounty.gov/healthservices/DDD/plansAndPolicies/2010-2013DDPlan.aspx' title='KCDDD 3 Year Draft Plan'/><link rel='enclosure' type='' href='http://www.kingcounty.gov/healthservices/DDD/plansAndPolicies/2010-2013DDPlan.aspx' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3486026642984631917/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/04/kcddd-3-year-draft-plan.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3486026642984631917'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3486026642984631917'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/04/kcddd-3-year-draft-plan.html' title='KCDDD 3 Year Draft Plan'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-7400804355643390019</id><published>2010-04-26T07:49:00.000-07:00</published><updated>2010-04-26T08:26:39.682-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='NEW and INNOVATIVE'/><category scheme='http://www.blogger.com/atom/ns#' term='Inclusivity'/><category scheme='http://www.blogger.com/atom/ns#' term='Art'/><category scheme='http://www.blogger.com/atom/ns#' term='&quot;COMMUNITY&quot; RESOURCES'/><title type='text'>*********************INTERACT************</title><summary type='text'>Hybrid Day Care&amp;Professional Arts CenterMINNEAPOLISHere are excerpts from an MPP Downtownjournal article by Gregory Scott  about a  program that, without even trying,  seems to  both  stretch and challenge  the concept of community inclusion!"A hybrid day care  and professional arts center, Interact admits  people with disabilities on a selective basis. Those accepted train  professionally in </summary><link rel='related' href='http://www.downtownjournal.com/index.php?&amp;story=15298&amp;page=65&amp;category=92' title='*********************INTERACT************'/><link rel='enclosure' type='' href='http://www.downtownjournal.com/index.php?&amp;story=15298&amp;page=65&amp;category=92' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/7400804355643390019/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/04/interact.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7400804355643390019'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7400804355643390019'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/04/interact.html' title='*********************INTERACT************'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1350923429184069433</id><published>2010-04-20T17:01:00.000-07:00</published><updated>2010-04-26T08:31:29.833-07:00</updated><title type='text'>PUBLIC INPUT  NEEDED: 3 YEAR PLAN</title><summary type='text'>KING COUNTY PLAN 2010-2013  ServicesFor  People with Developmental Disabilities Including Children : Birth To 3 yearsLetter from:From: Campbell, Jane [mailto:Jane.Campbell@kingcounty.gov]Sent: Monday, April 19, 2010 3:29 PMSubject: Public Input to King County DDD 2010-2013 PlanThe King County Developmental Disabilities Division (KC DDD) has released the draft Plan for Developmental Disabilities </summary><link rel='related' href='http://www.kingcounty.gov/healthservices/DDD/plansAndPolicies/2010-2013DDPlan.aspx' title='PUBLIC INPUT  NEEDED: 3 YEAR PLAN'/><link rel='enclosure' type='' href='http://www.kingcounty.gov/healthservices/DDD/plansAndPolicies/2010-2013DDPlan.aspx' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1350923429184069433/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/04/public-input-input-needed-3-year-plan.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1350923429184069433'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1350923429184069433'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/04/public-input-input-needed-3-year-plan.html' title='PUBLIC INPUT  NEEDED: 3 YEAR PLAN'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3303589969005509223</id><published>2010-04-19T13:45:00.000-07:00</published><updated>2010-04-19T14:01:10.467-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='NEW and INNOVATIVE'/><category scheme='http://www.blogger.com/atom/ns#' term='&quot;COMMUNITY&quot; RESOURCES'/><title type='text'>Pediatric &amp; Special Needs Dental Clinic</title><summary type='text'>NEW DENTAL SERVICESSeattleSpecial needs children in the Seattle area will soon have a new option for dental care.  Opening of the Washington Dental Service  Early Childhood Oral Health (ECOH) clinic  will soon result from  collaboration between Seattle Children's Hospital and the UW School of Dentistry.  September 2010 is when the service is planned to open in a former Navy Administration </summary><link rel='related' href='http://dental.washington.edu/departments/ped/ecoh.php' title='Pediatric &amp; Special Needs Dental Clinic'/><link rel='enclosure' type='' href='http://dental.washington.edu/departments/ped/ecoh.php' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3303589969005509223/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/04/pediatric-special-needs-dental-clinic.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3303589969005509223'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3303589969005509223'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/04/pediatric-special-needs-dental-clinic.html' title='Pediatric &amp; Special Needs Dental Clinic'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-36754939725404589</id><published>2010-04-19T01:11:00.000-07:00</published><updated>2010-04-19T02:23:50.950-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='MEDICAID LAW'/><category scheme='http://www.blogger.com/atom/ns#' term='RIGHTS'/><category scheme='http://www.blogger.com/atom/ns#' term='PERMANENT HOMES'/><title type='text'>ICFs/MR &amp; NFs AS PERMANENT HOMES</title><summary type='text'>ENTRY AND PERMANENT STATUS  RIGHTSDid you know that  ICFs/MR (Intermediate Care Facilities for people with Mental Retardation)  &amp;  NFs (Nursing Facilities) can be elected by their residents as their permanent homes (or their legal representatives can make that choice for them)?"Ugh! Who would want that?"  People do; because, for some folks,  such residences afford more, not less, freedom and </summary><link rel='related' href='http://www.vor.net/get-help/toolkit-for-families/' title='ICFs/MR &amp; NFs AS PERMANENT HOMES'/><link rel='enclosure' type='' href='http://www.vor.net/get-help/toolkit-for-families/' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/36754939725404589/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/04/icfsmr-nfs-as-permanent-homes.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/36754939725404589'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/36754939725404589'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/04/icfsmr-nfs-as-permanent-homes.html' title='ICFs/MR &amp; NFs AS PERMANENT HOMES'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3003994143806251373</id><published>2010-04-17T16:14:00.000-07:00</published><updated>2010-04-17T16:33:00.438-07:00</updated><title type='text'>** YOUTH-TO-ADULT TRANSITIONS**</title><summary type='text'>NEW GRANT FUNDS YOUTH TRANSITIONSSCHOOL TO ADULT LIFEA $3 million grant from the Walmart Foundation School‐to‐Community Transition Project of  the Walmart Foundation will help support  a new initiative to help youth with intellectual and developmental disabilities.  The money   will be shared nationwide  by  45 local chapters of  The ARC, including  the ARC of Washington State.To learn if your </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3003994143806251373/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/04/new-funding-for-youth-to-adult.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3003994143806251373'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3003994143806251373'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/04/new-funding-for-youth-to-adult.html' title='** YOUTH-TO-ADULT TRANSITIONS**'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-626458643321501073</id><published>2010-04-17T15:46:00.000-07:00</published><updated>2010-04-18T23:37:17.677-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='NEWS'/><category scheme='http://www.blogger.com/atom/ns#' term='DDD funding'/><title type='text'>BUDGET NEWS: GOOD, BAD, &amp; NEUTRAL</title><summary type='text'>The Washington State 2010  Supplemental Budget has been released after a long, extended session.  It now remains for our governor to sign it or  send it back.Readers from other states are invited to submit lists for their own states similar to the one, below, for Washington.  It could give us  all a sense of being part of something bigger and some orientation related to how our states </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/626458643321501073/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/04/budget-news-good-bad-neutral.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/626458643321501073'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/626458643321501073'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/04/budget-news-good-bad-neutral.html' title='BUDGET NEWS: GOOD, BAD, &amp; NEUTRAL'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8182812523989547032</id><published>2010-04-17T13:23:00.000-07:00</published><updated>2010-04-17T16:54:19.725-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='DD EXCHANGE: PURPOSE'/><title type='text'>********VISION: DDexchange********</title><summary type='text'>What Would You Like?I am not sure  how many  are  visiting  here, so far.  Probably, I will need to repeat this, or variations of it, as our numbers increase.My hope for Developmental Disabilities Exchange  is to establish a dynamic conversation, maybe many, on the subjects of improving what is available  for people with developmental disabilities.In our state, much focus has been on a </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8182812523989547032/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/04/ddexchange-needs-you.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8182812523989547032'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8182812523989547032'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/04/ddexchange-needs-you.html' title='********VISION: DDexchange********'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8280272963536914890</id><published>2010-04-17T09:05:00.000-07:00</published><updated>2010-04-19T03:26:41.697-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='EVENTS'/><title type='text'>***********LIFE IMITATES ART**********</title><summary type='text'>8th Annual Sprout Film Festival"Making The Invisible Visible" April 30th-May 2nd, 2010NEW YORK"NEW YORK, April 16 /PRNewswire-USNewswire/ -- The 8th Annual Sprout Film Festival invites the general public to experience a film festival which showcases the lives, performances, and accomplishments of people with developmental disabilities. Held at the Metropolitan Museum of Art over the weekend of </summary><link rel='related' href='http://www.prnewswire.com/news-releases/making-the-invisible-visible-life-imitates-art-at-the-8th-annual-sprout-film-festival-91026659.html' title='***********LIFE IMITATES ART**********'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8280272963536914890/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/04/life-imitates-art.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8280272963536914890'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8280272963536914890'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/04/life-imitates-art.html' title='***********LIFE IMITATES ART**********'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3056057317174289580</id><published>2010-04-09T17:15:00.000-07:00</published><updated>2010-04-09T18:51:52.181-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='VOR Action Alert: Oppose Ne&apos;eman nomination'/><title type='text'>****OPPOSE ARI NE'EMAN'S NOMINATION****</title><summary type='text'>VOR ACTION ALERTApril 9, 2010PRESIDENT'S  NOMINEE for NATIONAL COUNCIL ON DISABILITIES IS REPORTED TO OPPOSE AUTISM CURE RESEARCH FUNDINGSent by request of Robin Sims, VOR President."This Action Alert pertains to a Presidential nominee for the National Council on Disability (NCD), Ari Ne'eman. Mr. Ne'eman, who has Asperger's syndrome, is a self-proclaimed self-advocate for all persons with autism</summary><link rel='related' href='http://capwiz.com/a-champ/issues/alert/?alertid=14874836.' title='****OPPOSE ARI NE&apos;EMAN&apos;S NOMINATION****'/><link rel='enclosure' type='' href='http://www.ipetitions.com/petition/opposeari/http://capwiz.com/a-champ/issues/alert/?alertid=14874836' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3056057317174289580/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/04/vor-action-alert-ari-neeman-stop-his.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3056057317174289580'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3056057317174289580'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/04/vor-action-alert-ari-neeman-stop-his.html' title='****OPPOSE ARI NE&apos;EMAN&apos;S NOMINATION****'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8836363850288925511</id><published>2010-04-04T22:55:00.000-07:00</published><updated>2010-04-05T15:05:27.596-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='DUAL and  MULTIPLE DIAGNOSIS'/><category scheme='http://www.blogger.com/atom/ns#' term='EVENTS'/><title type='text'>********************NAMIWalks*******************</title><summary type='text'>*A  phenomenon which we seldom see discussed is dual and multiple diagnosis among people with developmental disabilities.  Mental illness is among the more common problems with which it can be paired.  Another very challenging situation occurs in families in which one child has a developmental disability and another has a mental illness.The following invitation comes from a parent who has such </summary><link rel='related' href='http://www.nami.org/namiwalks10/SEA/cheryl' title='********************NAMIWalks*******************'/><link rel='enclosure' type='' href='http://www.nami.org/namiwalks10/SEA/cheryl' length='0'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8836363850288925511/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/04/namiwalks.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8836363850288925511'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8836363850288925511'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/04/namiwalks.html' title='********************NAMIWalks*******************'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-5932164237306077480</id><published>2010-03-29T01:17:00.000-07:00</published><updated>2010-03-29T02:18:41.322-07:00</updated><title type='text'>Aimee Mullins at TEDMED 2009</title><summary type='text'>There is a lot of emphasis, lately on language, especially debate over the words "mental retardation."  On the one hand,  with regard to public services,  diagnoses of pathology are often required to obtain them.   We have to be careful that in insisting on retiring old language, we somehow retain the ability to access needed services.On the other hand, language very much shapes our perceptions;,</summary><link rel='related' href='http://www.medgadget.com/archives/2010/02/aimee_mullins_at_tedmed_2009.html' title='Aimee Mullins at TEDMED 2009'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/5932164237306077480/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/aimee-mullins-at-tedmed-2009.html#comment-form' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5932164237306077480'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5932164237306077480'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/aimee-mullins-at-tedmed-2009.html' title='Aimee Mullins at TEDMED 2009'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3237653901933834884</id><published>2010-03-25T19:12:00.000-07:00</published><updated>2010-03-25T21:19:57.361-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='NEW and INNOVATIVE'/><category scheme='http://www.blogger.com/atom/ns#' term='Inclusivity'/><category scheme='http://www.blogger.com/atom/ns#' term='Books'/><category scheme='http://www.blogger.com/atom/ns#' term='STORIES'/><title type='text'>***********A REGULAR  GUY***********</title><summary type='text'>       Excepts From a Funny &amp; Moving BookHere  are  excerpts from an enjoyable, and eye-opening story  by Barbara Shumaker.  I recommend a visit to the website cited below for the entire piece.'"we got a letter from an attorney asking us to contact him about the bicycle accident involving Matthew. It turned out that while riding his bike, Matthew had apparently collided with a young boy on his </summary><link rel='related' href='http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2006/01/15/CMGQIF603V1.DTL#ixzz0jFDn9asl' title='***********A REGULAR  GUY***********'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3237653901933834884/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/regular-guy-excepts-from-funny-moving.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3237653901933834884'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3237653901933834884'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/regular-guy-excepts-from-funny-moving.html' title='***********A REGULAR  GUY***********'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-7237430781111315476</id><published>2010-03-24T21:41:00.000-07:00</published><updated>2010-03-24T22:05:41.575-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='SEMINARS'/><title type='text'>VOR 2010 ANNUAL CONFERENCE &amp; INITIATIVE</title><summary type='text'>MARK YOUR CALENDARJune 4 - 9The Liaison Capitol HillWashington, D.C.  REGISTRATIONEARLY BIRDS SAVEFOR DISCOUNT, REGISTER BEFORE  APRIL 1VOR Members who register  before April 1, 2010 receive a discounted registration fee of just $40.Available at  http://vor.net/events/ :Complete details,  online registration  or  flyer with details,  &amp;  registration formSponsorship and Recognition Opportunities!</summary><link rel='related' href='http://www.vor.net/events/' title='VOR 2010 ANNUAL CONFERENCE &amp; INITIATIVE'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/7237430781111315476/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/vor-2010-annual-conference-initiative.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7237430781111315476'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7237430781111315476'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/vor-2010-annual-conference-initiative.html' title='VOR 2010 ANNUAL CONFERENCE &amp; INITIATIVE'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-4564093788850203123</id><published>2010-03-23T20:01:00.000-07:00</published><updated>2010-03-23T20:14:45.131-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='SEMINARS'/><title type='text'>YAI Network's 31st Annual International Conf. 2010</title><summary type='text'>On March 22, 2010 @ 5:22pm, Lynn U. Berman wrote:Hi Saskia,I thought your followers on  Developmental Disabilities Exchange might be interested in the following information about our upcoming conference in New York City.The YAI Network's 31st Annual International Conference: “Decade of Decisions: Moving Forward in Developmental and Learning Disabilities” will be held on April 26-29, 2010.Designed</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/4564093788850203123/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/yai-networks-31st-annual-international.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/4564093788850203123'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/4564093788850203123'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/yai-networks-31st-annual-international.html' title='YAI Network&apos;s 31st Annual International Conf. 2010'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-7898743948808283</id><published>2010-03-22T12:48:00.000-07:00</published><updated>2010-03-22T13:32:49.080-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Contact Legislators'/><title type='text'>Special  Leg. Session: calls  and  emails</title><summary type='text'>*WA. PEOPLE WITH DD NEED ALL 5  RHCS  in  the  FULL CONTINUUM OF CARE FOR THEM.It's time to call &amp; email  your legislators, again.  The more, the better.Get friends and family to do the same.  And, tomorrow, start over!</summary><link rel='related' href='http://apps.leg.wa.gov/rosters/default.aspx' title='Special  Leg. Session: calls  and  emails'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/7898743948808283/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/special-leg-session-opportunities-calls.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7898743948808283'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7898743948808283'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/special-leg-session-opportunities-calls.html' title='Special  Leg. Session: calls  and  emails'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-6126821105131941978</id><published>2010-03-21T18:32:00.000-07:00</published><updated>2010-03-21T18:57:35.964-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='NEW and INNOVATIVE'/><category scheme='http://www.blogger.com/atom/ns#' term='Books'/><title type='text'>Kishorit Therapeutic Community: Israel</title><summary type='text'>I've been reading a book, Rachel in the World - A Memoir; and the author  took her daughter to this place in Israel.  It  is a self-sustaining community.    I think this  would be wonderful for some of our folks!  Here is a link to it -  http://www.kishorit.co.il/SiteFiles/1/1689/13030.asp  -Pandiecats</summary><link rel='related' href='http://www.kishorit.co.il/SiteFiles/1/1689/13030.asp' title='Kishorit Therapeutic Community: Israel'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/6126821105131941978/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/therapeutic-community-in-israel.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6126821105131941978'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6126821105131941978'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/therapeutic-community-in-israel.html' title='Kishorit Therapeutic Community: Israel'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-6963363321700921463</id><published>2010-03-20T22:49:00.000-07:00</published><updated>2010-03-20T23:28:18.181-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='THE RHC CONTROVERSY'/><category scheme='http://www.blogger.com/atom/ns#' term='Inclusivity'/><title type='text'>Discrimination by Arc Against RHC Residents?</title><summary type='text'>This article was submitted  by Pandiecats.  In it, she elaborates on comments she made in response to the article entitled RHC &amp;/OR Community" Arc &amp; A Family Who Knows Both. (To read it, click article name  in  side list: 3/18/2010)Pandiecats: The Arc of Washington has banned me from their Facebook group.  They also won't post anything from me on their blog.  I have been banned!This is the  ARC’s</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/6963363321700921463/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/discrimination-by-arc-against-rhc.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6963363321700921463'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6963363321700921463'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/discrimination-by-arc-against-rhc.html' title='Discrimination by Arc Against RHC Residents?'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-7627507097958870074</id><published>2010-03-20T09:44:00.000-07:00</published><updated>2010-03-20T10:03:48.853-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='SEMINARS'/><category scheme='http://www.blogger.com/atom/ns#' term='ENCOURAGEMENT'/><title type='text'>"Developmental Possibilities Awareness Month"</title><summary type='text'>Here is some very tastey  food-for-thought, from a lengthy  report of a  workshop presented by the  New Mexico Center for Self-Advocacy in Albuquerque.  The writer,  Jaime Vergara, is the father of 2 children with autism spectrum  disorder."Based on current wisdom that chaos is at the bottom of our physics, and individual diversity is the universal norm, the view that “disability” is just one's </summary><link rel='related' href='http://www.saipantribune.com/newsstory.aspx?cat=3&amp;newsID=9808' title='&quot;Developmental Possibilities Awareness Month&quot;'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/7627507097958870074/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/developmental-possibilities-awareness.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7627507097958870074'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7627507097958870074'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/developmental-possibilities-awareness.html' title='&quot;Developmental Possibilities Awareness Month&quot;'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-9081475581516538492</id><published>2010-03-18T00:10:00.000-07:00</published><updated>2010-03-18T01:34:50.898-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='THE RHC CONTROVERSY'/><title type='text'>RHC &amp;/or Community: Arc &amp; A Family Who Knows Both</title><summary type='text'> Summarized, below, is an email exchange which vividly illustrates both sides of the dispute over RHCs.  It was provided by the family of 2 people with dd: one, Jason,  a child living at home with his parents, the other a sibling, David C.,  who lives successfully in an RHC.  After the introductory note by the child's mother,  the summary represents their   correspondence  with the Policy &amp; </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/9081475581516538492/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/rhc-community-arc-family-who-knows-both.html#comment-form' title='4 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/9081475581516538492'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/9081475581516538492'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/rhc-community-arc-family-who-knows-both.html' title='RHC &amp;/or Community: Arc &amp; A Family Who Knows Both'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>4</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-6099254412021908793</id><published>2010-03-16T00:36:00.000-07:00</published><updated>2010-03-16T00:53:06.067-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='SEMINARS'/><category scheme='http://www.blogger.com/atom/ns#' term='DOWN&apos;S SYNDROME'/><title type='text'>Seminar Notice: People with DD &amp; Alzheimers</title><summary type='text'>Press release submitted by Tami S Seitz  3/15/10 (Excerpted)(http://qconline.com/archives/qco/display.php?id=483980)MOLINE, IL:"Alzheimer's disease is increasing among persons with developmental  disabilities, particularly those with Down Syndrome.  It must be considered a terminal condition that presents  numerous challenges to provider organizations, families and friends of  those who are </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/6099254412021908793/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/seminar-notice-people-with-dd.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6099254412021908793'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6099254412021908793'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/seminar-notice-people-with-dd.html' title='Seminar Notice: People with DD &amp; Alzheimers'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-5065221363713358088</id><published>2010-03-16T00:10:00.000-07:00</published><updated>2010-03-16T00:21:38.615-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='NEW and INNOVATIVE'/><category scheme='http://www.blogger.com/atom/ns#' term='NEWS'/><title type='text'>From Mainstreaming to Specialty School?</title><summary type='text'>Could this proposal have merit?By Carl  Orth | The Suncoast News   NEW CHARTER SCHOOL (excerpts)Published: March 6, 2010HUDSON - Potential is a terrible thing to waste. So Emile Laurino hopes his concept for a new charter school will go to the head of the class. Families are looking for a different approach to education for their children with developmental disabilities, according to an "action </summary><link rel='related' href='http://suncoastpasco.tbo.com/content/2010/mar/06/pg-new-charter-school-envisioned-in-hudson/' title='From Mainstreaming to Specialty School?'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/5065221363713358088/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/from-mainstreaming-to-specialty-school.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5065221363713358088'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5065221363713358088'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/from-mainstreaming-to-specialty-school.html' title='From Mainstreaming to Specialty School?'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1604463941671626566</id><published>2010-03-14T22:04:00.000-07:00</published><updated>2010-03-14T22:23:07.401-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='DD EXCHANGE: PURPOSE'/><category scheme='http://www.blogger.com/atom/ns#' term='Inclusivity'/><category scheme='http://www.blogger.com/atom/ns#' term='STORIES'/><title type='text'>Expanding Persective</title><summary type='text'>Recently, I started this blog, hoping that conversation among people with their differing needs &amp; experiences would lead to mutual caring &amp; support &amp;, eventually, to mutual, creative solutions to the problems we face.  Care for people with dd is very expensive, but thinking back over the many years I have been involved, assuming there is not enough money for this or that only assures that the </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1604463941671626566/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/expanding-persective.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1604463941671626566'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1604463941671626566'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/expanding-persective.html' title='Expanding Persective'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-5433421719519900524</id><published>2010-03-11T03:15:00.000-08:00</published><updated>2010-03-11T03:43:35.826-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Inclusivity'/><title type='text'>We All Belong!</title><summary type='text'>"He drew a circle that left me  out, heretic, rebel,  a thing to flout;but Love and I had the wit to win;we drew a circle that took him in."This verse comes back to me from childhood.  I wish I knew to whom the authorship credit belongs.Just now, it seems to fit perfectly the strategy that those who need RHCs are called upon to adopt.One of ARC's and the DDC's  newest initiatives is "We All </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/5433421719519900524/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/we-all-belong.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5433421719519900524'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5433421719519900524'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/we-all-belong.html' title='We All Belong!'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-7263247980781962746</id><published>2010-03-11T01:44:00.000-08:00</published><updated>2010-03-11T02:00:37.074-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='SB 6182'/><title type='text'>A Dose of Sanity For SB6182</title><summary type='text'>Yesterday, some much needed sanity was added to SB6182 by senators who understand the importance of the role that RHCs play and who support  fiscal accountability  &amp;  even-handedness in making law,  as well as absence of conflict of interest. Gold stars for Senators Schoesler, King, Honeford, Roach and Sheldon!Saskia</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/7263247980781962746/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/dose-of-sanity-for-sb6182.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7263247980781962746'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/7263247980781962746'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/dose-of-sanity-for-sb6182.html' title='A Dose of Sanity For SB6182'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-6443187537147114502</id><published>2010-03-10T12:35:00.000-08:00</published><updated>2010-03-10T12:56:01.561-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='STORIES'/><category scheme='http://www.blogger.com/atom/ns#' term='RHC CLOSURE DISCUSSION'/><title type='text'>RHC Closures=Jail</title><summary type='text'>Here is still another lucid argument &amp; plea by the mother of a person with autism.  Having recently   lived  in the "community,"  her son now is in an RHC."  One can readily understand his  family's  strong  support for  retaining them."This is my family's story if Fircrest is closed:We just barely survived Fodor Homes and the stress of the closure.  Our severely autistic son, who can be violent,</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/6443187537147114502/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/here-is-still-another-lucid-argument.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6443187537147114502'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6443187537147114502'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/here-is-still-another-lucid-argument.html' title='RHC Closures=Jail'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2443316866894264673</id><published>2010-03-09T22:42:00.000-08:00</published><updated>2010-03-09T23:13:37.483-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='STORIES'/><category scheme='http://www.blogger.com/atom/ns#' term='RHC CLOSURE DISCUSSION'/><title type='text'>Gram's Letter to Legislators</title><summary type='text'>Here is a grandmother's letter that was recently sent to legislators.  I am posting it in the hope that it will help RHC opponents understand the importance of the programs for which they are advocating closure, and too, that along with the "community," RHCs have also sustained severe cuts in revenue, forcing elimination &amp;/or decline of important services."Our grandson is in an institution; and </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2443316866894264673/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/here-is-grandmothers-letter-that-was.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2443316866894264673'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2443316866894264673'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/here-is-grandmothers-letter-that-was.html' title='Gram&apos;s Letter to Legislators'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1205735581966161025</id><published>2010-03-08T21:34:00.000-08:00</published><updated>2010-03-08T22:14:25.409-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='RHC CLOSURE DISCUSSION'/><title type='text'>ARC/DDC videos</title><summary type='text'>You are strongly encouraged to visit this website: http://olympiainsider.org/.  Cut and paste this URL or click on the link in the left hand list.   You will see a list of pictures representing podcast videos, below which are links  that you can click to play or download. You can read instructions at the top.What you will find is a series of  surprisingly well done, very political videos, shot on</summary><link rel='related' href='http://olympiainsider.org/' title='ARC/DDC videos'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1205735581966161025/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/arcddc-videos.html#comment-form' title='3 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1205735581966161025'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1205735581966161025'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/arcddc-videos.html' title='ARC/DDC videos'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>3</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3974379350483266734</id><published>2010-03-07T23:31:00.000-08:00</published><updated>2010-03-07T23:40:14.106-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Books'/><title type='text'>For Late Talkers</title><summary type='text'>This interactive  book just came to my attention.  I haven't seen it, personally, but it sounds wonderful for late talkers.    THE BIG BOOK OF EXCLAMATIONS.  Here is the URL:  http://linkme4ever.com/watches/?p=2054 .Please, if you buy and use it, come back to us with your review.Saskia</summary><link rel='related' href='http://linkme4ever.com/watches/?p=2054' title='For Late Talkers'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3974379350483266734/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/for-late-talkers.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3974379350483266734'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3974379350483266734'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/for-late-talkers.html' title='For Late Talkers'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-6056853414062657875</id><published>2010-03-06T05:01:00.000-08:00</published><updated>2010-03-06T05:35:39.102-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Music'/><category scheme='http://www.blogger.com/atom/ns#' term='Movies'/><category scheme='http://www.blogger.com/atom/ns#' term='Books'/><category scheme='http://www.blogger.com/atom/ns#' term='Art'/><title type='text'>ALWAYS MORE TO LEARN</title><summary type='text'>It is easy for us to be experts on the type of developmental disabilities our loved ones, wards, clients, and neighbors have.  Toward more mutual understanding &amp; empathy and a deeper sense of community,  we will be adding  reading, movies  &amp; possibly even art  &amp; music.Here are a few  resources related to autism.Temple GrandinDr. Temple Grandin is a remarkable woman with autism who teaches at a </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/6056853414062657875/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/always-more-to-learn.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6056853414062657875'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6056853414062657875'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/always-more-to-learn.html' title='ALWAYS MORE TO LEARN'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-5531406267711921388</id><published>2010-03-05T21:52:00.000-08:00</published><updated>2010-03-05T22:00:37.875-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='STORIES'/><title type='text'>Prosecutor’s employee delivers with speed</title><summary type='text'>Here is a heartwarming, "community" oriented,  success story.  It is reprinted from The Journal on line:By Lauren Pack, Staff Writer 10:38 PM Sunday, February 28, 2010HAMILTON — Elizabeth Crehan loves sports. Known as Liz or Lizzy to most, she excels in softball and is looking forward to playing shortstop this spring. But perhaps she should have considered track, because the 39-year-old laps </summary><link rel='related' href='http://www.journal-news.com/news/hamilton-news/prosecutors-employee-delivers-with-speed-573026.html' title='Prosecutor’s employee delivers with speed'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/5531406267711921388/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/prosecutors-employee-delivers-with.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5531406267711921388'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5531406267711921388'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/prosecutors-employee-delivers-with.html' title='Prosecutor’s employee delivers with speed'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-6869715839701316367</id><published>2010-03-05T21:27:00.000-08:00</published><updated>2010-03-05T21:50:51.445-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='SB 6182'/><title type='text'>more on SB6182</title><summary type='text'>Understanding that it is never over until the budget is signed by the Governor, if all goes well, SB-6182, the bill that would have removed RHCs from state statute, has died.   As of 5:45, with cut-off at 6:00, it had not passed out of the Rules Committee, and    Committee Chair Brad Owens' Aide did not consider it probable that it would at such a late hour.How this would affect the budget </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/6869715839701316367/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/more-on-sb6182.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6869715839701316367'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6869715839701316367'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/more-on-sb6182.html' title='more on SB6182'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-406820712664179236</id><published>2010-03-04T00:01:00.000-08:00</published><updated>2010-03-04T02:45:18.759-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='SB 6182'/><title type='text'>Pitting People With DD Against Each Other</title><summary type='text'>SB 6182, should it become law, would remove RHCs from State statute. It would clear one obstacle from the path of closing the RHCs.  Yesterday, in the morning it was added to the  Sen. Ways &amp; Means schedule and then  passed on to the Rules Committee without having had a public hearing.  Last year, it was tabled for lack of sufficient time for testimony in it's hearing!  Why would  public </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/406820712664179236/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/03/today-our-amazing-senate-ways-means.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/406820712664179236'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/406820712664179236'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/03/today-our-amazing-senate-ways-means.html' title='Pitting People With DD Against Each Other'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-5806981372419618918</id><published>2010-02-28T20:12:00.000-08:00</published><updated>2010-02-28T22:11:39.236-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='&quot;Community&quot; Quality Assurance Standards'/><title type='text'>FIX COMMUNITY QA</title><summary type='text'>The House budget doesn't close Frances Haddon Morgan Center; The Senate budget would close it .FHMC families are frightened at the possibility.  One of their many reasons is inadequate "quality assurance" in the "community." Inadequate, that is,   to  protect cognitively impaired children or adults with severe developmental disabilites.This is not to say that all “community” venues are bad, only </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/5806981372419618918/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/improve-community-qa.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5806981372419618918'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5806981372419618918'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/improve-community-qa.html' title='FIX COMMUNITY QA'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2093593431552822874</id><published>2010-02-19T21:18:00.000-08:00</published><updated>2010-02-19T21:58:54.793-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='STORIES'/><title type='text'>LONNIE’S STORY by Lonnie's Mom</title><summary type='text'>Lonnie was one of those children who were admitted to Rainier School when he was barely fourteen years old.  He will be sixty-two this year.  He is the oldest of five siblings – one brother and three sisters.  From the day Lonnie was born, he was extremely hyperactive and had an attention span of zero seconds.  Elementary school class work was difficult for him.  He couldn’t stay focused.    Now,</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2093593431552822874/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/lonnies-story-by-lonnies-mom-lonnie-was.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2093593431552822874'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2093593431552822874'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/lonnies-story-by-lonnies-mom-lonnie-was.html' title='LONNIE’S STORY by Lonnie&apos;s Mom'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8904347940922571927</id><published>2010-02-16T20:51:00.000-08:00</published><updated>2010-02-17T07:56:37.338-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='ENCOURAGEMENT'/><title type='text'>New at ActionDD &amp;  THIS BLOG IS "OURS"</title><summary type='text'>Today, I want to recommend you to some new  links and posts @ actiondd.org. (To go to the site, click on the word, "ActionDD" toward the bottom of the list of websites to the left. )Thank you  to Paul Strand, Actiondd's webmaster for the new  information.  It should come in handy as you write to and talk with your legislators.I was pleased to receive, off line, a query about why I am not posting </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8904347940922571927/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/new-at-actiondd-this-blog-is-ours.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8904347940922571927'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8904347940922571927'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/new-at-actiondd-this-blog-is-ours.html' title='New at ActionDD &amp;  THIS BLOG IS &quot;OURS&quot;'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8958802233253342382</id><published>2010-02-14T15:29:00.000-08:00</published><updated>2010-02-14T17:12:12.114-08:00</updated><title type='text'>SOGGY BUT SPIRITED  FHMC  RESCUE RALLY</title><summary type='text'>What an extraordinary labor of love!  The day was wet, cold and grey, the site: the sidewalk of a busy Bremerton street and  a  parking lot, donated by Arnold's Furniture.  The event was the statewide rally to rescue  Frances Haddon Morgan Center.  A couple of portable canopies kept the food dry and provided dry  space for conversation. Dedicated RHC proponents got drenched while  chanting  and </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8958802233253342382/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/soggy-but-spirited-inspiring-fhmc.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8958802233253342382'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8958802233253342382'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/soggy-but-spirited-inspiring-fhmc.html' title='SOGGY BUT SPIRITED  FHMC  RESCUE RALLY'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-4527520315646344730</id><published>2010-02-12T21:38:00.000-08:00</published><updated>2010-02-12T22:11:31.636-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='EVENTS'/><title type='text'>RHC Residents' Rights Rally</title><summary type='text'>RHC Residents' Rights Rally  Saturday, Feb 13,   11:30-4:00Help save the rights of families to choose the  services for their loved ones that serve their "best interests."Families,  caregivers &amp;  union members   from across the state are coming to rally  for our loved ones!We will share stories, &amp; make friends and connectionsto become even  more effective to sustain the rights of all of the </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/4527520315646344730/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/rhc-residents-rights-rally.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/4527520315646344730'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/4527520315646344730'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/rhc-residents-rights-rally.html' title='RHC Residents&apos; Rights Rally'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-5645478194749612723</id><published>2010-02-11T18:10:00.000-08:00</published><updated>2010-02-11T18:32:41.626-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='You can help defeat SSB-6780'/><title type='text'>TOGETHER, WE ARE AWESOME!</title><summary type='text'>Thank you , everyone, for your letters to legislators, your stories that illustrate the value of RHCs!    Be  encouraged that they have paid off to the extent that the 3  RHC attack bills appear to be dead.HOWEVER, please keep up  your  letters, calls and stories to legislators in  order to prevent resurrection, next week,  when the supplemental budgets are unveiled. If you haven't contacted your</summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/5645478194749612723/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/together-we-are-awesome.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5645478194749612723'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/5645478194749612723'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/together-we-are-awesome.html' title='TOGETHER, WE ARE AWESOME!'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-3350773222561003590</id><published>2010-02-11T12:46:00.000-08:00</published><updated>2010-02-11T12:57:30.844-08:00</updated><title type='text'>ABUSE &amp; NEGLECT</title><summary type='text'>On Feb 10, 2010, at 8:16 AM, marsha sutton wrote:Letter to Ways and Means committee February 10, 2010We ask you to not support SSB6780 which fails to address our concerns regarding SB6780.In 2009 my husband and myself spoke before the House and Senate giving details of our daughter Rachel’s abuse in the private and community care facilities which went on for several years until she was finally </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/3350773222561003590/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/on-feb-10-2010-at-816-am-marsha-sutton.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3350773222561003590'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/3350773222561003590'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/on-feb-10-2010-at-816-am-marsha-sutton.html' title='ABUSE &amp; NEGLECT'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8592641348003457772</id><published>2010-02-09T21:07:00.000-08:00</published><updated>2010-02-09T22:46:29.214-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='You can help defeat SSB-6780'/><title type='text'></title><summary type='text'>Dear RHC friends,Below is what ARC has put out to their membership, today (excerpted.)  This is really a shame.  We should not be in the position of defending critical resources for people who already have been failed by the "community."  Neither should "community" residents who genuinely do not have services be in the position they are.  We should be working together to find solutions to </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8592641348003457772/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/dear-rhc-friends-below-is-what-arc-has.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8592641348003457772'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8592641348003457772'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/dear-rhc-friends-below-is-what-arc-has.html' title=''/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2056868304531131887</id><published>2010-02-08T04:19:00.000-08:00</published><updated>2010-02-08T05:42:14.247-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Costs of SSB-6780'/><title type='text'>COSTS OF SSB-6780 FACT SHEET DOWNLOAD</title><summary type='text'>That SSB-6780 will cost far more than legislators are being told comes as no surprise to those of us who remember the 2003-05 Fircrest closure attempt.  For a downloadable Fact Sheet on the costs, click on "COSTS OF SSB-6780"  in the link list on the left.  Just scroll down a little.  (If you received a cost fact sheet by email on Saturday, 2/6, you have it already, though this one is in PDF.)   </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2056868304531131887/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/costs-of-ssb-6780-fact-sheet-download.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2056868304531131887'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2056868304531131887'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/costs-of-ssb-6780-fact-sheet-download.html' title='COSTS OF SSB-6780 FACT SHEET DOWNLOAD'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8000428614168843379</id><published>2010-02-07T12:12:00.000-08:00</published><updated>2010-02-08T05:35:56.646-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='You can help defeat SB-6780'/><title type='text'>ActionDD Response to SSB-6780</title><summary type='text'>As discussed in the previous post, the Senate Health &amp; Long Term Care committee, last week,  amended the RHC closure bill (SSB-6780) and passed it.  Next stop: Senate Ways &amp; Means Committee.ActionDD  ( advocates for a full continuum of care and services for  people with developmental disabilities : residential habilitation center or one of the many "community" residential options supported by </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8000428614168843379/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/actiondd-response-to-ssb-6780.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8000428614168843379'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8000428614168843379'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/actiondd-response-to-ssb-6780.html' title='ActionDD Response to SSB-6780'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-4246413956614838490</id><published>2010-02-05T01:41:00.000-08:00</published><updated>2010-02-05T21:23:04.907-08:00</updated><title type='text'>Call Senate Ways and Means Committee members: NO on SSB6780</title><summary type='text'>This blog is long, but  a quick read.Below are some info &amp; reasons for defeating SSB6780 and encouragement to call Senate Ways and Means Committee members.  The names and numbers are at the bottom.The RHC closure bill is still bad business. From a humane point of view,  it repeals the legal rights of RHC residents to an adjudicated appeal process when  a move planned by the State  may not be  </summary><link rel='related' href='http://www.leg.wa.gov/Senate/Committees/WM/Pages/MembersStaff.aspx' title='Call Senate Ways and Means Committee members: NO on SSB6780'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/4246413956614838490/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/call-senate-ways-and-means-committee.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/4246413956614838490'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/4246413956614838490'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/call-senate-ways-and-means-committee.html' title='Call Senate Ways and Means Committee members: NO on SSB6780'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-8711231799179334746</id><published>2010-02-01T16:15:00.000-08:00</published><updated>2010-02-01T16:32:32.170-08:00</updated><title type='text'>TIMES EXPOSE..ADULT FAMILY HOME ABUSES</title><summary type='text'>SB6780 (See the 2 posts, below.) was introduced right before the 3 part Seattle TIMES expose on abuses of Seniors  in adult family homes.  The kind of abuses described in the first article mimic those suffered by my sister, Kathy, in a community facility before she came to Fircrest.    Be sure to read the article, as its message also speaks to the potential for current RHC residents should they </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/8711231799179334746/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/times-exposeadult-family-home-abuses.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8711231799179334746'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/8711231799179334746'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/times-exposeadult-family-home-abuses.html' title='TIMES EXPOSE..ADULT FAMILY HOME ABUSES'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1872411633644530254</id><published>2010-02-01T14:50:00.000-08:00</published><updated>2010-02-01T15:56:11.762-08:00</updated><title type='text'>You Can Help Defeat SB6780</title><summary type='text'>If passed, SB6780 would not help "community" residents with dd, it would  not save money for the state and it would harm to RHC residents.  (See post below)You can help defeat it: Tell the committee members  your concerns and ask them to vote against SB6780.1.  Make calls to your Senator and to each of the members of the Senate Health and Long Term Care committee:  Keep trying until you get </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1872411633644530254/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/you-can-help-defeat-sb6780.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1872411633644530254'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1872411633644530254'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/you-can-help-defeat-sb6780.html' title='You Can Help Defeat SB6780'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-6996266329770854539</id><published>2010-02-01T13:06:00.000-08:00</published><updated>2010-02-01T16:05:14.677-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='SB6780 RHC CLOSURE BILL'/><title type='text'>SB6780 RHC CLOSURE BILL</title><summary type='text'>CLOSE ALL 5 RHCS?Senator Freiser, chair of the Washington State Senate Health and Long Term Care committee, has introduced a new bill that would close all  5 of the residential habilitation centers (RHCs) for people with developmental disabilities. The is bill is a travesty; it's passage would be tragic for people who need and thrive in RHCs.  Sponsors are Senators Ranker, Kline, Delvin and </summary><link rel='related' href='http://apps.leg.wa.gov/billinfo/summary.aspx?bill=6780&amp;year=2010' title='SB6780 RHC CLOSURE BILL'/><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/6996266329770854539/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/02/sb6780-rhc-closure-bill.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6996266329770854539'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/6996266329770854539'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/02/sb6780-rhc-closure-bill.html' title='SB6780 RHC CLOSURE BILL'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1967902726456685746</id><published>2010-01-27T20:08:00.000-08:00</published><updated>2010-07-10T15:34:57.848-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='DD EXCHANGE: PURPOSE'/><title type='text'>Developmental Disabilities Exchange:</title><summary type='text'>Everyone's Input is WelcomeThis evening, I finally can invite everyone to participate in this blog.  Until now, the "comment"  section has been locked; and it seemed wrong to invite you to  conversation and then prohibit it, so I've been waiting.   I am new to this business of blogging, so I'm just feeling my way along.Part of my background is as a facilitator of peer support groups.  Our groups </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1967902726456685746/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/01/this-evening-i-finally-can-invite.html#comment-form' title='4 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1967902726456685746'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1967902726456685746'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/01/this-evening-i-finally-can-invite.html' title='Developmental Disabilities Exchange:'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>4</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-2437075783690262075</id><published>2010-01-18T01:04:00.000-08:00</published><updated>2010-01-18T12:26:25.598-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='RHC CLOSURE DISCUSSION'/><title type='text'>RHCs: Keep or Close &amp; Why?</title><summary type='text'>Ever since  Gov. Gregoire proposed in her budget to close all of the residential habilitation centers, (RHCs), I have been asking: "What would be gained?""Revenue savings?" Hardly! Even though the closure study missed many of the costs associated with "community" services for people with developmental disabilities, it did admit that RHC closures would cost the state money!Liberation for RHC </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/2437075783690262075/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/01/rhcs-keep-or-close-why.html#comment-form' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2437075783690262075'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/2437075783690262075'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/01/rhcs-keep-or-close-why.html' title='RHCs: Keep or Close &amp; Why?'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-5492412764979482181.post-1899545360311179487</id><published>2010-01-16T04:40:00.000-08:00</published><updated>2010-07-17T22:26:14.022-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='STORIES'/><title type='text'>KATHY'S STORY</title><summary type='text'>I am guardian of my sister, Kathy, who entered my life as a  brain injured newborn.  I was  5  at the time.  She was placed in my arms within the first hour after she arrived home.  From then on, I thought she was mine.Doctors advised my parents to "put the baby away and forget about her."  That was never an option.  Kathy would stay at home in our family. Period.  In order to assure resources </summary><link rel='replies' type='application/atom+xml' href='http://ddexchange.blogspot.com/feeds/1899545360311179487/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://ddexchange.blogspot.com/2010/01/kathys-story-i-am-guardian-of-my-sister.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1899545360311179487'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5492412764979482181/posts/default/1899545360311179487'/><link rel='alternate' type='text/html' href='http://ddexchange.blogspot.com/2010/01/kathys-story-i-am-guardian-of-my-sister.html' title='KATHY&apos;S STORY'/><author><name>Saskia Davis</name><uri>http://www.blogger.com/profile/07358551318002605426</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://1.bp.blogspot.com/_heAqLGtfIgY/S1FikmV37uI/AAAAAAAAAAQ/XkA9KTRcTX0/S220/CIMG0250.jpg'/></author><thr:total>0</thr:total></entry></feed>
